I received the following e-mail from Julia Bradsher, CEO of FAAN. This news couldn't have come at a better time, especially considering my previous post about a tragic food allergy death at a Chicago school. Read on and let's celebrate. FAAMA will save lives.
Dear Jenny,
We did it!!
Five years after the Food Allergy and Anaphylaxis Management Act (FAAMA) was introduced in the U.S. Congress, FAAMA has finally passed as part of the food safety bill and is expected to be signed into law by President Obama.
FAAMA will lead to the much-needed creation of national food allergy management guidelines for schools. While these guidelines are voluntary, they will provide schools without existing food allergy management policies with a valuable resource.
These policies are critical to help educate school officials about food allergy, a potentially life-threatening medical condition, and help them implement emergency plans in case a severe reaction occurs on school grounds. Studies have shown that up to 25% percent of reactions in school occur in children with previously undiagnosed food allergy.
Earlier this month, a fatal reaction occurred at a school in Chicago, allegedly due to food that was consumed at school.
The guidelines will also benefit parents of children with food allergies, who are looking for a vetted resource to help them safely manage their child’s food allergies in the school setting.
Written largely by FAAN, the national guidelines will not supersede existing or pending state laws or guidelines concerning schools and food allergies. The FAAMA guidelines should be seen as a complement to existing guidelines created as a result of other legislation.
This tremendous accomplishment was made possible by the thousands of individuals who advocated for this legislation and many elected representatives who co-sponsored FAAMA over the years, most notably Sen. Christopher Dodd (D-Conn.), whose daughter has a food allergy, and Rep. Steny Hoyer (D-Md.), who has a grandchild with a food allergy.
We celebrate the passage of FAAMA today, but our work is not done. FAAN will continue to work diligently to raise awareness, educate others, and advocate on behalf of the millions of Americans with food allergy and anaphylaxis.
Thank you all for your support!
Julia Bradsher
FAAN CEO
Wednesday, December 22, 2010
Tuesday, December 21, 2010
Tragic Food Allergy Death Points to Desperate Lack of Education
Everybody has been talking about this story today and I really need to chime in. I first heard of it on The Food Allergy Mama's Facebook page. Then, today, I read the story in the Chicago Tribune and also got flooded with e-mails.
I feel sick about this. This did not need to happen. This poor girl's tragic death could have been prevented. Why did this happen?
The entire facts of the case aren't yet clear and I'm only discussing what I read in the news story. More may be revealed later. Mention was made of Chinese food served in the classroom which the girl apparently ate. Epinephrine autoinjectors, or lack of them, were also mentioned. It's not clear if this student had a food allergy emergency plan or not.
The news story tells how the school ordered in Chinese food after being assured, allegedly, by the restaurant, that the food would be peanut-free. OK, let's just stop right there. Chinese restaurant food can NEVER be safe for a peanut-allergic person. If you know anything about how Chinese food is prepared or its key ingredients, you know that it is off-limits to peanut-allergic people for good reason. Cross-contact will present problems even if actual ingredients do not. In fact, on the list our allergist gave us, Chinese and Asian foods are at the top of the "do not eat" list.
Food allergy education can save lives. For example: "peanut-free" does NOT mean "safe for life-threateningly allergic to peanuts." To many, many people, "peanut-free" means, simply, that the recipe does not contain actual peanuts. Maybe a restaurant, in good faith, says "peanut-free" when they don't understand that what the customer was really asking for was "safe for peanut allergy" or "no risk of cross-contact." Being clear is key. Please, please, be clear.
I've learned never to assume that restaurant staff understand what you mean. That's why you ask for the chef or manager about the meal and present your food allergy cards to the wait staff. Check out FAAN for these downloadable cards.
This story just makes me so fed up. It's not only schools or restaurants that need education, it's the general public. Parents of the school where this child died are now talking "peanut ban." But what good is a peanut ban if people are ordering in supposedly "peanut-free" Chinese food and then serving it to a peanut-allergic girl??? No good at all. Education is key. Education will save lives.
This could have been your child. This could have been my daughter. For all of you heading out to holiday celebrations, please take something positive from this horrific incident and stand firm about your child's food restrictions. Food allergies can be fatal, and it's tragic. Even more tragic is that a fatal reaction could have been prevented with simple knowledge.
My heart goes out to this family in their loss.
I feel sick about this. This did not need to happen. This poor girl's tragic death could have been prevented. Why did this happen?
The entire facts of the case aren't yet clear and I'm only discussing what I read in the news story. More may be revealed later. Mention was made of Chinese food served in the classroom which the girl apparently ate. Epinephrine autoinjectors, or lack of them, were also mentioned. It's not clear if this student had a food allergy emergency plan or not.
The news story tells how the school ordered in Chinese food after being assured, allegedly, by the restaurant, that the food would be peanut-free. OK, let's just stop right there. Chinese restaurant food can NEVER be safe for a peanut-allergic person. If you know anything about how Chinese food is prepared or its key ingredients, you know that it is off-limits to peanut-allergic people for good reason. Cross-contact will present problems even if actual ingredients do not. In fact, on the list our allergist gave us, Chinese and Asian foods are at the top of the "do not eat" list.
Food allergy education can save lives. For example: "peanut-free" does NOT mean "safe for life-threateningly allergic to peanuts." To many, many people, "peanut-free" means, simply, that the recipe does not contain actual peanuts. Maybe a restaurant, in good faith, says "peanut-free" when they don't understand that what the customer was really asking for was "safe for peanut allergy" or "no risk of cross-contact." Being clear is key. Please, please, be clear.
I've learned never to assume that restaurant staff understand what you mean. That's why you ask for the chef or manager about the meal and present your food allergy cards to the wait staff. Check out FAAN for these downloadable cards.
This story just makes me so fed up. It's not only schools or restaurants that need education, it's the general public. Parents of the school where this child died are now talking "peanut ban." But what good is a peanut ban if people are ordering in supposedly "peanut-free" Chinese food and then serving it to a peanut-allergic girl??? No good at all. Education is key. Education will save lives.
This could have been your child. This could have been my daughter. For all of you heading out to holiday celebrations, please take something positive from this horrific incident and stand firm about your child's food restrictions. Food allergies can be fatal, and it's tragic. Even more tragic is that a fatal reaction could have been prevented with simple knowledge.
My heart goes out to this family in their loss.
Monday, December 20, 2010
Peanut Allergy Holiday Tips from SunButter...and Me!
Just wanted to share this great link from SunButter that features some holiday tips for kids with food allergies including some of mine and a link to my blog.
Hey, SunButter, I'm glad you like my advice because we LOVE SunButter around here. It's our new favorite snack and so much less fat than peanut butter besides being safe for my allergic daughter. You guys rock!
I was thinking about other suggestions that I have for parents based on my experiences and here's a big one: go with your instincts and never let your guard down.
Sometimes the holiday foods presented to us are overwhelming. There are so many high-risk for nut allergy items that it can seem tempting to say "what the heck, it's Christmas, just eat it." I understand that but don't do it. Too many reactions occur because someone had "just one cookie" or piece of candy.
Instead, know that you will be faced with tempting sweets and off-limit foods and be prepared. Bring your own safe cookies (but keep them on their own tray) or whatever item is your child's favorite. That way, you can whip out that safe choice when your child is faced with something they really shouldn't eat.
SunButter included one of my favorite tips which is "Don't apologize for the allergy." Many parents, especially families where the allergy diagnosis is fairly new, can be made to feel like they are being overzealous or are raining on everyone's parade because they have to restrict the foods their child eats and/or is exposed to.
It's not your fault and your job as a parent is to make sure your child's health is protected. So don't cave, don't apologize and most importantly, stay positive. A cheerful, firm attitude really does work when it comes to food allergies.
Thanks again to SunButter for providing a great product and for supporting my blog!
Hey, SunButter, I'm glad you like my advice because we LOVE SunButter around here. It's our new favorite snack and so much less fat than peanut butter besides being safe for my allergic daughter. You guys rock!
I was thinking about other suggestions that I have for parents based on my experiences and here's a big one: go with your instincts and never let your guard down.
Sometimes the holiday foods presented to us are overwhelming. There are so many high-risk for nut allergy items that it can seem tempting to say "what the heck, it's Christmas, just eat it." I understand that but don't do it. Too many reactions occur because someone had "just one cookie" or piece of candy.
Instead, know that you will be faced with tempting sweets and off-limit foods and be prepared. Bring your own safe cookies (but keep them on their own tray) or whatever item is your child's favorite. That way, you can whip out that safe choice when your child is faced with something they really shouldn't eat.
SunButter included one of my favorite tips which is "Don't apologize for the allergy." Many parents, especially families where the allergy diagnosis is fairly new, can be made to feel like they are being overzealous or are raining on everyone's parade because they have to restrict the foods their child eats and/or is exposed to.
It's not your fault and your job as a parent is to make sure your child's health is protected. So don't cave, don't apologize and most importantly, stay positive. A cheerful, firm attitude really does work when it comes to food allergies.
Thanks again to SunButter for providing a great product and for supporting my blog!
Friday, December 17, 2010
Christmas with a Peanut Allergy? 'Tis the Season to Be Nutty
It's time for my yearly rant about tree nuts and peanuts flying at you from all directions at the winter holidays! Enjoy and feel free to add your Grinchy gripes. It will make you feel better. ;)Six year ago when I discovered that my oldest daughter had a life-threatening nut allergy, I wasn't fully aware of the impact that this diagnosis would have on the holidays. But I should have been. Let's face it — a big part of any holiday is the food. Add nut allergies to the mix and you’ve got a recipe for a stressful situation.
It seems to me that the world becomes increasingly more infatuated with nut-containing recipes starting around Halloween and continuing until after the New Year. Food magazines, TV news segments and newspaper cooking sections are filled with nuts, nuts and more nuts. There appears to be a primal desire to stock up on foods that highlight walnuts, pecans, cashews and almonds, almost like a squirrel stocks up on acorns for the winter.
For example, as I flipped through current issues of my favorite magazines, I found recipes for caramel nut cheesecake, Roquefort salad with walnuts, kugel with pecans, green beans with almonds, broccoli casserole with pecans, peanut butter blossom cookies, bourbon balls with crushed walnuts, candied nuts and pecan-laced turkey stuffing. You get the picture. Also, a homemade front-door holiday wreath devised of walnut shells.
Yes, nuts are everywhere you look this time of year (that's not even including our nearest and dearest) and as the walnut wreath proves, sometimes tree nuts greet you at the door even before the hosts do.
Because of the recipes and nutty crafts floating around, holiday parties and dinners pose major challenges to the nut-allergic. Unfortunately those two warhorses of holiday entertaining — buffets and potlucks — can be a health hazard. Standard buffet fare such as complicated casseroles with 20 ingredients or cookie recipes with crushed pecans are off-limits. Sometimes the food doesn't even have to contain nuts but has come into contact with them. If we don't know for sure about a particular food, our daughter doesn't get to eat it, so often she doesn't get to partake of holiday treats made outside of our home.
Food isn't the only thing that's dicey about holiday dining with nut allergies. Since food is so deeply rooted in tradition and emotion, the potential to either offend or be offended during what I’ve come to view as “the nutty season” is endless. It’s almost inevitable that a nut-allergic family will encounter a friend or relative who just doesn’t believe that food allergies are real or who are certain that "just one bite" of their treasured recipe won't hurt, when in fact, it could. People who wouldn’t dream of questioning a child’s diabetes or asthma diagnosis may peg you as a “nut” for asking about every ingredient in a dish, or label your child as "picky" if you are obliged to bring them a separate meal for safety's sake.
For the most part, my family is able to focus on the fun aspects of holiday celebrations and not the food gaffes. We've been fortunate to have a lot of support from family members and friends. Plus, my husband and I enjoy entertaining at our home, which helps eliminate the need for others to concern themselves with the menu. When we do attend a holiday party, I'm always willing to whip up a nut-free side dish or decorated cupcakes.
Perhaps because an individual with food allergies is denied so many treats at this time of year, food allergies teach you how to appreciate the most important things in life. Family, friends and the good fortune to be eating a delicious dinner at all come to mind. I've also found that my daughter is unusually compassionate to other people...maybe because she has her own struggles,she is always quick to support kids who deal with difficulties of their own.
Despite the fact that we sometimes feels as if "Life is a bowl of cashews," it's wonderful to be present at the table with those we love most. And even though my family has to be more cautious about what foods we place on that on that table, "the nutty season" is worth it.
Wednesday, December 15, 2010
New Food Allergy Guidelines: Will They Make a Parent's Job Easier??
A lot of you may have seen these recent news stories about new food allergy guidelines from the National Institute of Allergy and Infectious Diseases. For those of you who didn't see this info or who want links, I've provided them below.
About a week and a half ago, the NIAID released new guidelines for diagnosing food allergies. These guidelines are intended to be especially helpful for parents whose children have been diagnosed with multiple food allergies and who may have very restricted diets.
Also, here's what the Wall Street Journal had to say about the new guidelines.
Personally, my family's life is not affected much by these new guidelines because my daughter has not only been diagnosed via blood and skin testing, she has also experienced more than one reaction to nuts and peanuts. We know the allergy is there and since one reaction was about a year ago, she's not a candidate for new tests at this time. In other words, her allergy is hanging on, at least for now.
However, the new guidelines are so encouraging to so many because up until now, not everyone was being diagnosed in the same way. This led to confusion, misdiagnosis and possibly unnecessary limited diets--which we also know means limited lifestyle. Also, food allergies can fluctuate and change over time. This is also addressed by the new guidelines.
As always, please get advice from a board-certified allergist or pediatrician before changing anything you are doing with regard to your child's allergies.
About a week and a half ago, the NIAID released new guidelines for diagnosing food allergies. These guidelines are intended to be especially helpful for parents whose children have been diagnosed with multiple food allergies and who may have very restricted diets.
Also, here's what the Wall Street Journal had to say about the new guidelines.
Personally, my family's life is not affected much by these new guidelines because my daughter has not only been diagnosed via blood and skin testing, she has also experienced more than one reaction to nuts and peanuts. We know the allergy is there and since one reaction was about a year ago, she's not a candidate for new tests at this time. In other words, her allergy is hanging on, at least for now.
However, the new guidelines are so encouraging to so many because up until now, not everyone was being diagnosed in the same way. This led to confusion, misdiagnosis and possibly unnecessary limited diets--which we also know means limited lifestyle. Also, food allergies can fluctuate and change over time. This is also addressed by the new guidelines.
As always, please get advice from a board-certified allergist or pediatrician before changing anything you are doing with regard to your child's allergies.