Thursday, March 15, 2012

Nut-Free St. Patrick's Day Must-Have: Nut-Free Irish Soda Bread!



When you have a peanut or a tree nut allergy, Irish soda bread from the bakery is off-limits due to cross-contact risk, but that's OK because I prefer the wholesome goodness of baking my own.

Here is a link to my St. Patrick's Day post from last year, that included two delish nut-free recipes for soda bread. I hope you enjoy them!

Tuesday, March 13, 2012

Food Allergy News: The Nut-Free Mom on WBEZ's news magazine "Eight Forty Eight"



It was a beautiful day to be at Navy Pier in Chicago and that's where I was today as a guest at WBEZ, the local Chicago affiliate of National Public Radio. The morning news magazine "Eight Forty-Eight" (named after the Grand Ave. address of the Navy Pier building)featured the topic of food allergies and I was honored to appear as the parent voice for this topic. My daughter Alexandra (pictured above) joined me on my radio adventure.

I want to thank WBEZ for offering me this opportunity to help educate the public about what it's like to parent a child with food allergies. That is truly appreciated. And I was so fortunate to be paired with the knowledgeable and very personable Dr. Steve Handoyo. He explained the scientific side of allergies in an extremely clear and thoughtful manner, so thanks also to Dr. Steve!

Here is the link to the radio show ; you can listen online or download a podcast.

Wednesday, March 7, 2012

Food Allergy and Summer Camp: Resources for Parents

With spring comes thoughts of summer camp for our kids. But what if they have life-threatening food allergies? Obviously, we are going to have some serious concerns that need to be addressed by the camp, but in many cases our kids can participate.

The photo I share above is of my oldest daughter as a Girl Scout, nearly five years ago. She desperately wanted to attend Girl Scout day camp, a story that I shared here in an essay that I wrote for Allergic Living magazine. (By the way, today is the last day to subscribe to receive the spring issue! I've contributed some food and product info, and there is even an interview with author John Grisham who suffers from food allergies. Subscribe by following this link.)

Like you, I had my doubts and serious concerns. My daughter was only finishing second grade, so she still needed lots of help managing her allergies. Luckily, we had a successful week but I did receive a few phone calls while camp was in session--just one was food allergy related.

Sleepaway camp is not something we've tackled yet, but my daughter would like to. I would approach any camp the same way that I did with her day camp.

First of all, I would suggest that your child not be the pioneer allergic camper unless you can really trust the camp administrators to understand food allergies. I say this because it is really much better if they already have food allergy plans in place, have served allergic campers successfully and have gone through the drills needed to execute an emergency action plan if it were needed. Of course, it's up to you, but one of the deciding factors for me and my husband when we allowed our daughter to attend GS camp was that they had separate forms and contact people for food-allergic campers and a full time EMT at the camp. Plus, the camp was not in an overly remote location--basically, it was not an hour to the nearest hospital. I know, not pleasant to think about but important to know.

Second, what is the food service situation? If day camp, can your child bring their own food and who will take care of it for them? Can you be given a menu so that you can anticipate any food allergy problems in advance? If a sleepaway camp, are the cooking staff trained in food allergy management and do they know about cross-contact issues? Do they know how to provide an allergic camper a safe meal? Try to speak to the people who do the actual cooking.

Also, does the camp serve peanut butter to campers and if so, how do they protect the allergic kids? For example, do they offer separate eating areas and is handwashing enforced before and after lunch?

Third, what do they do with the epinephrine auto-injectors? Where are they stored, can your camper carry one and who knows how to use them?

If at all possible, I highly recommend a nut-free camp for those dealing with life-threatening nut allergies. There are more of these than you think. I was a co-host at a live online chat at The Motherhood last year with Lori Sandler of the awesome Divvies (famous nut-free, egg-free, dairy-free treats) that discussed summer camp, parties and play dates. Lori invited some wonderful leaders of camp associations to attend and they had some terrific resources and advice. You can click here to see the transcript/summary of that chat.

The bottom line is that you have to do your homework before giving the OK to any camp. Check out food service, the available emergency medical care, common camp activities (for example, are they big on art projects involving food?) and investigate the training given to the camp staff. Discuss these things in person if possible, but don't rely on e-mail alone. An initial phone call is helpful, too. I've found that it's important to have an actual conversation with the staff because you get a better opportunity to determine their comfort level with your questions and concerns.

Your child's age and responsibility level is also a key factor. For me, sleepaway camp is better for the older kids, since we can usually count on them to be more self-sufficient at managing their allergies.

You're the best judge to decide if your food-allergic child is ready for camp, but for those of you who have taken the plunge, how did it go for you? Any advice for newbie campers out there?

Monday, March 5, 2012

Food Allergies and "Safe" Activities: How Do You Decide?

One of the most frequent questions I hear from parents of kids with food allergies and peanut allergy, especially, is whether or not a certain activity is "safe" for their child. It stands to reason: Peanut residue (and tree nut, too, if you've got that concern as my family does), is all around us and often in the spots where you'd like to bring your kids. Events like the circus, baseball games, arena sporting events (like basketball or football), concerts, indoor playgrounds at the shopping mall -- just about every place you can think of might have a significant amount of allergen in the environment.

As parents, we might wonder: what are we supposed to do with this information? We can't keep our kids away from anything and most of us don't want to do that. This is one reason I'm so glad to see more and more baseball teams offering "peanut allergy-friendly" sections or "peanut-free" baseball games. Since peanuts are tradition at baseball, limiting them in certain sections takes a huge weight off parent's shoulders, especially those of us who've watched their child have a reaction during a regular game.

First, the bad news about nut allergies and whether or not to do something: this is not a question with a one-size-fits-all answer. I still struggle with it, depending on the activity or event. For one thing, a child's age and awareness of their allergy will play a role; so will their level of sensitivity to an allergen. If you have a child who is extremely sensitive, you might not even ask yourself if you can do something involving a lot of the allergen; you just don't do it. For example, with all of the peanuts everywhere, we don't feel comfortable bringing our daughter to a baseball game without a peanut-free section, especially at an outdoor field where weather, wind and peanut dust blowing around in the air is a strong possibility.(Be sure to ask your allergists about your particular situation; everyone is different.)

The event itself is a factor, too. How big of a role does an allergen play in this activity?Sometimes that will decide it if for you.


Now the good news: most of the time, you can find a way around allergies and do the activities you and your kids enjoy. And for the things you can't do or don't feel good about doing--it's OK. Your kids can still have an awesome, full and happy childhood.

I think it's important for parents to give themselves a break when it comes to dealing with food allergies. While it's important to find ways to do things that kids really want to do, we shouldn't feel like we have to take heroic measures to do every single thing. I mean, let's face it: even without food allergies, most kids can't do every single thing they'd like to do.

I remember when my daughter was first diagnosed with severe allergies at age 4. We found out in a very scary way--anaphylaxis following one bite of a peanut butter sandwich.

At the time, my daughter was in preschool and was beginning to get invited to birthday parties. Tea parties for the girls were big that year, held in special venues that catered to little kids. Of course, the main focal point of these parties was, you guessed it, food. Lots of unsafe food. Baked goods galore, sweets, sandwiches with PB & J...you get the picture.

I got pretty good at deciding what parties we would go to and which ones we wouldn't. I'd ask a few questions. Was my daughter really excited about this party or person? Would she be devastated if she didn't go? If she did go, would it be worth it to send in basically an entire menu of separate food and then still be concerned someone would give her the wrong thing?

When my daughter was four, I also had a toddler and limited outside childcare (aka, grandparents, sitters), so I think that decided a lot of it for me, too. I couldn't drag my little one to every party and drive myself crazy trying to keep an eye on her and make sure anaphylaxis didn't happen, too. So we skipped a few parties if we really didn't know the hosts, I saved myself some stress, and yet my daughter still had a good time at the things she did attend. And I've found that most of the time, yes, you can do the things your kids want to do. But if not, don't worry. They will be fine.

So much of dealing with a first diagnosis of food allergies is just getting your mind around the lifestyle changes and challenges. You will find your own way of deciding how to do what's most important to you, but don't beat yourself up if you think you'll fall short by not doing everything and going everywhere. Some places and things will feel more "right" to you than others will and that's OK.

If you decide to go someplace like the circus or a hands-on children's museum where cross-contact might be a problem, it's a good idea to approach with the understanding that you might have to leave early. Have your hand wipes, medication, food from home and everything else you need, but be aware that you might want to cut the event short if you feel your child is having a problem with allergies. Sometimes you just won't know unless you try (and of course managing risk in the first place is important). For those of you new to nut allergies, I talk about all of this and more in my new e-book: "The New Nut-Free Mom."

Thursday, March 1, 2012

Nut-Free Candy New: Amanda's Own Confections (Dairy-Free, Egg-Free and Gluten-Free, Too!)




Already stressed about filling your Easter basket with delicious but nut-free Easter candy? Stress no more. My kids and I recently had the opportunity to try the sweet and allergy-friendly treats from Amanda's Own Confections, a wonderful company that produces dairy-free, nut-free, egg-free and gluten-free chocolates and candies. Besides Easter candy, they've got an array of items for birthday parties, St. Patrick's Day, first communion and much more.




I'm always happy to pass on information about companies that are diligent in providing delicious candy that also adheres to nut-free (and other allergy-friendly) standards. It just makes life so much easier when we know that the allergy work has been done for us already. Then we can just sit back and watch our kids enjoy some yummy treats without the worry. Note: Be sure to save some of this delicious dark chocolate for yourself. Studies show that dark chocolate has health benefits for adults. Just sayin'.




What about soy? Here's what Amanda's Own says on their website: "Our chocolate contains soy lecithin, however, the soy protein has been removed." Check with your doctors about soy lecithin if that is a concern for you.




And here is some more information on the company's allergen-free facility: "Our suppliers have certifications from the Food and Drug Administration (FDA) stating that their facilities are dairy-free, peanut-free, tree nut-free, egg-free, gluten-free and sesame-free.There are no other products in our facility, so there is NO chance for any cross contamination from any other food allergens."




My kids loved the cute shapes and delicious deep dark chocolates we were given as samples, but the company also makes jelly beans and other nut-free, dairy-free, egg-free, gluten-free treats.




Best of all, Amanda's Own Confections are available in quite a few stores! Click the link for a store locator, or if it works better for you, you can order online.




FTC Note: Author was given food samples but no other compensation.