Food Allergy News: Bill Would Permit Epinephrine to be Stocked in Schools

Pictured: Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.
I want to ask you all for your help and advocacy as a new bill paves the way for a law that would permit Epinephrine to be stocked in schools.

I received the following notice from FAAN: The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

A few days ago, this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Jenny: I can speak to this. My daughter's allergy was discovered a preschool. She had one bite of a peanut butter sandwich and went into anaphylactic shock. That's how we found out she had an allergy. Unfortunately, this is a common way for parents to find out their child has a food allergy. Every second counts--even if an ambulance gets there quickly you've lossed precious time without epinephrine on hand.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

New Year, New Food Allergy? Here's What To Do

As we ring in 2011, I have noticed a huge increase in the number of e-mails and posts I've received from parents facing new nut allergy diagnoses in their kids and I've even heard from several young adults with new nut allergies.

The most frequent word I hear is "overwhelmed." This is so understandable. It is overwhelming. The wealth of information alone (often conflicting) can be hard to absorb. Plus, you may wonder if you'll ever have a normal life again, if you will ever learn to decipher food labels and if your child can even go to school. You wonder if every food has the potential to harm your child and/or you. Life can seem very scary and very surreal.

I've been there and I can tell you that things improve. But I can't sugar coat the facts: your life will change, sometimes in ways you may not even foresee now. Some of the changes will be hard to deal with; some may even be positive in the long run. I can think of two positive changes: becoming healthier in our family eating habits and learning to be more assertive in life and ask for what we need. I also have a truly compassionate daughter whose own struggles have made her want to be helpful to others facing different challenges.

Food allergies are never welcome and they make life more difficult at times. But you can live well with them. Here are some things that have helped me and my family:

Seek expert medical advice from an allergist. I've found the best people to handle the medical aspects of food allergy have been our allergists. Find a board-certified allergist and then follow their advice. Keep up on yearly visits, appropriate testing and keep in contact with them about medications. An allergist will be more knowledgeable on food allergies than most pediatricians, not to knock them because they're helpful, too. But an allergist will be more up-to-date on the constantly changing aspects of food allergies and this will be invaluable to you.

Always stand firm about food allergies. You'll meet people who don't take food allergies seriously, who may even blow them off completely. Sometimes those closest to you won't accept the situation. Be prepared for it. Usually, ignorance about food allergies is the key reason. If you know that something is not safe then avoid the food, situation or if need be, the person until they "get it." Risking an allergic reaction to preserve any relationship is never worth it. As we saw recently in Chicago, food allergies can be fatal when not clearly understood or properly respected.

Be informed but don't overload on random info. This is the hardest thing because Internet access can uncover some crazy stories and information. Stick to respected resources such as The Food Allergy & Anaphylaxis Network, Allergic Living magazine and The Food Allergy Initiative for research and facts. (And I hope you'll visit me for lifestyle tips and food allergy news.) Overloading on stories of food allergy deaths or unproven medical information is never helpful and may be harmful.

Knowledge is half the battle. The good news is, if you're reading this you probably have received medication, medical advice and are just generally prepared to face a reaction if it occurs. Witnessing an allergic reaction without any knowledge of what may be causing it or without any medication to treat it is much, much worse. If you know what you're dealing with, you can avoid or safely adapt to potentially harmful situations and cut down on risk.

I want to wish a healthy and Happy New Year to you all! Let's be safe together and please continue to share your input and comments!