Showing posts with label jenny kales. Show all posts
Showing posts with label jenny kales. Show all posts

Friday, August 26, 2011

Food Allergies in School: The First Week

School's in session for many of us and it's no secret that food allergies at school can be a major cause of stress for parents, teachers, administrators and the kids themselves. I wish I had a one-size fits all option for everyone, but the fact is, many factors will determine how your school handles food allergies. Sometimes it's the people, sometimes the policies and sometimes it's a little bit of both.

We have just completed our first week of school and I have to confess--after the first partial school day, my oldest (with food allergies) has been home all week with some kind of virus that is luckily improving. So there you go! Never even thought about that happening with all the other allergy-related stuff on my mind. However, the feedback I've gotten so far from teachers and other food allergy parents has been really encouraging.

I spent a lot of time before the "big day" communicating with teachers, staff and other parents about how we would handle food allergies at school. I also had doctor's appointments and prescriptions, forms to fill out and discuss. In previous years, I have been extremely fortunate to work with wonderful teachers who wanted to help our daughter have a great school year. Without fail, they helped institute several safety measures.

However, throughout the entire school, rules about food allergies were often inconsistent and that was frustrating.

That was last year. This year, it's a whole new story because of the new district-wide food allergy policies now in place. Last year, after an Illinois law was passed that gave tax breaks to schools who follow the Illinois state food allergy management guidelines, our district came up with an extensive protocol for dealing with food allergies in a consistent way. 504 Plans and IHPs (Individual Health Plans) are still available for those who need them, but overall there is now a detailed document to refer that illustrates how our district mandates the handling of food allergies.

For example, the school lunchroom must have an allergy-free table and cleaning protocols. Lunchroom supervisors are advised of the allergic kids and their right to sit at this table (if they desire) along with one or two friends. This sounds easy, but if these measures are not spelled out and implemented, it can create chaos for the allergic kids in the lunchroom (as well as the staff.)

In addition, classroom procedures regarding handwashing and eating are being implemented that will help protect allergic kids (and probably eliminate a few colds or flu in the process.)

Even with good district policies on food allergies, parents still need to speak up about concerns and if possible, offer a solution that works. It's always good to become a resource to the teachers and the school, whether it's helping out with parties or suggesting simple and workable ways to maintain a safe classroom. Recognize that teachers have a lot to deal with and offer to help them in any way you can. If they do implement food allergy safety policies, always say thank you.

Not every school throughout the country has implemented state guidelines on the issue of food allergies, so please write to your state reps if you want this in place in your state. That's how we got it in Illinois. Support groups like MOCHA as well as FAAN helped with letter-writing/calling. Bloggers (including me) urged readers to write to their reps and explain the positive difference that food allergy guidelines would make at school.

It takes time and effort. It might even give you a few gray hairs along the way. But just knowing that there is a well thought-out policy being followed is really reassuring.

No risk can ever be eliminated entirely and no parent expects that. Simple precautions have been proven to work and I'm very grateful that our school and teachers have become our partners with this.

Here's to a happy school year to everyone!

For more info on helping your school to become safer, please see this recent back-to-school post.

Thursday, September 16, 2010

Peanut Allergy-Safe Recipe: Completely Nut-Free and Delicious Pumpkin Bread


With fall upon us, I thought it was time for a heart-warming recipe for a good old-fashioned baked treat that will fill your house with the autumnal scents of pumpkin, brown sugar, cinnamon and pumpkin-pie spice. Hungry yet? The recipe you see pictured is for a bake sale at school--I'm slicing it up into individual slices and asking top dollar! (Hey, it is a fundraiser.) If you make it, you'll know why I am upping the sale price. It's crazy good and so versatile--it works for breakfast, brunch, snacks, with a cup of tea in the afternoon, you name it!

I customized this recipe from a similiar one I found in the Gourmet Magazine cookbook. One thing I changed was the streusel topping. Unlike many streusel toppings out there, the one I've devised manages to be crunchy and nut-free at the same time. Enjoy!

Nut-Free Pumpkin Spice Bread with Streusel Topping

Topping:
1 tablespoon all-purpose flour
5 tablespoons dark brown or light brown sugar
1 teaspoon ground cinnamon
1 tablespoon unsalted butter, slightly softened

Bread:
2 cups all-purpose flour
1 cup whole wheat flour
3/4 teaspoon fine sea salt
2 teaspoons baking soda
2 teaspoons pumpkin pie spice
1 15 oz can of solid pack pumpkin
3/4 cup vegetable oil
2-1/4 cups granulated sugar
4 large eggs, lightly beaten

Make the topping first:
Blend together flour, sugar, butter and cinnamon in a small bowl with your fingertips until the mixture looks like coarse meal.

For the bread:
Place rack in the middle of the oven and preheat to 350 degrees F. Spray Pam with flour on two 9 x 5 inch loaf pans.

Sift together flour, salt, baking soda, pumpkin pie spice in a medium bowl. In a large bowl, whisk pumpkin, sugar, eggs and oil. Add flour mixture to large bowl and stir gently until well combined.

Divide batter between loaf pans. Sprkinkle half of topping over each. Bake until a wooden skewer inserted in the center of the bread comes out clean 50-60 minutes.

Cool loaves in pan on wire rack for 45 minutes, then turn out of pan and let cool completely on rack, about one hour.

Wrap well in plastic wrap and foil to keep refrigerated for about a week. Can also be frozen up to one month.

Tuesday, August 10, 2010

Peanut Allergy News: Joel Stein Has to Eat His Nutty Words

I just discovered this piece of news from Food Allergy Mama, Kelly, and her recent post on Facebook. Remember Joel Stein, author of the truly vicious OpEd in the LA Times? Thanks to many kind readers, here is the link. (I had tried it a couple of days ago and it was broken.)

The gist of the Stein OpEd is that it lambasted parents of kids with nut allergies by calling into question not only the parents' rationality and intellect, but the reality of nut allergies in the first place. According to Mr. Stein, nut allergies are an invention of "rich, white, Yuppies" who want to "feel special."

Oh, dear. Mr. Stein is now going to have to eat his nutty words, preferably without any jelly to make it all go down easier. Because the August 9 version of Time Magazine has an article by Mr. Stein stating, that, wait for it...his 1-year-old son has nut allergies. Yes, you read that right. I guess truth is stranger than fiction.

At the time he wrote his '09 OpEd LA Times article, Joel Stein had zero tolerance for parents dealing with the often scary reality of a life-threatening food allergy. Unfortunately, I haven't gotten my hands on his current article yet because the Time website won't let you read more than a paragraph. I've got to buy the mag, inadvertently contributing to Mr. Stein's earnings. I have a feeling he can use the extra money. Maybe for a membership to FAAN? Or for expensive medication and allergist visits? Or for allergy-friendly foods (which tend to cost more)?

I am saddened for anyone who learns that their child has a life-threatening nut allergy, don't get me wrong. I hope that child stays safe and healthy. Hey, I know of a great blog about nut allergies that might be able to help.....

Unfortunately for Mr. Stein, the reality of nut allergies is not going to reveal itself to him overnight, allowing him to quickly dismiss his previous beliefs and move on. Over the next months and even years, he'll have to cope with many issues he may have never even considered when he wrote his damaging OpEd.

However, when he's ready to find our community, we'll be here with our tips, advice and support because we've already been where he is now, that is, sitting up at 3 in the morning worrying about our child. It all gets easier, Joel. Especially if you keep an open mind.

Wednesday, July 21, 2010

Are Food Allergies Getting Easier to Manage?

I was interviewed for the current issue of Special Parent magazine, a spin-off of Chicago Parent magazine. The story focused on Chicago-area businesses and restaurants that accommodate various food allergies and intolerances. The story also discussed the difficulties that parents have in managing food allergies with their children and how the new crop of businesses are beginning to make it easier.

Now, it's your turn. Can we have your input on allergy-friendly stores, restaurants or other establishments in your area?

Every little step does make it easier, especially when dining out with food allergies. I am encouraged by the article and am hopeful that more establishments will crop up to address our needs. We are definitely loyal customers once we trust a place, so the success of allergy-friendly establishments should be assured.

OK, let us hear from you!

Wednesday, June 23, 2010

Peanut Allergy Story in the Oklahoman Newspaper: Here's What I Had to Say

Yesterday I was contacted regarding this news story in the Oklahoman newspaper that discussed the possible peanut ban in airlines.

It's interesting to see how this story plays where peanut crops and/or farming are of big concern. Obviously, those in this industry will have certain opinions. For instance, the beginning of the story references a very allergic little girl, whose dad (a farmer) opposes a peanut ban because it would hurt the peanut farming industry.

OK, I don't want farmers to lose money, but that's not the point. No one dealing with a peanut allergy wants farmers to suffer. But whether or not farmers will suffer economically has nothing to do with the safety of allergy sufferers being exposed in-flight and having severe allergic reactions in a plane. And I'll go out on a limb and say that peanuts are so prevalent in American society that I don't think an airline ban on peanuts is going to sink that industry. Take it from me--peanuts and tree nuts are everywhere, in so many foods it's almost mind-boggling.

An EpiPen and "awareness" (read the story) are great things--but they don't solve everything. Currently the only way to effectively manage a peanut allergy -- or any food allergy -- is through strict avoidance of the allergen.

So what does that have to do with economics or politics? Nothing. Why are we still making allergies about economics or politics when it's really about public health?

Economics are a big player in what will decide this issue. What about all the loss of ticket sales that the airlines currently suffer from those affected by allergies? Many people write to me and say they will refuse to fly because of the peanut issue.

And what about cigarette bans in bars, planes and restaurants? This probably hurt the tobacco farmers. Should cigarettes be allowed in these public places so that tobacco farmers don't suffer economic hardship? Apparently not, since this ban went into effect.

The bottom line is that, for whatever reason, economic hardship is the trump card being played by people who don't get -- or don't care -- that food allergies can cause instaneous, needless death.

With the rise in all kinds of food allergies, soon everyone will "know" someone with this condition and with that, I hope the compassion grows.

Monday, June 21, 2010

Kane County Cougars go Peanut Free and More Peanut Free Baseball

Summer is in full swing and at this time of year I get many questions from readers about peanut free baseball games. If you're in Illinois, mark your calendars for the Kane County Cougars--they are completely peanut-free on July 14th! Visit their web site for more details.

In addition, Jennifer B of Food Allergy Buzz has a list of current peanut-free baseball games on her sister site. Click the link to discover who is having peanut-free games and/or sections and when these games are.

Many major league teams now offer peanut-free games and/or designated seating including the Minnesota Twins, Arizona Diamondbacks and the Boston Red Sox. Unfortunately, the Cubs and the White Sox do not have peanut-free days yet, but I did read that the Cubs' new owners are looking into this. I hope they do--I contacted them about this recently and am going to follow up. If you live in Chicago, feel free to contact them about peanut-free baseball as well. Peanut shells litter Wrigley Field and it's currently pretty tricky for allergic fans to attend their games.

If you are baseball fans, support these peanut-free days by showing up whenever possible! Going out to the ball game is a fun family activity and we'd love to see more peanut-free sporting events. What's going on with peanut-free sports in your community? Let us know.

Wednesday, June 16, 2010

Peanut Allergy and Air Travel: Make Your Voices Heard!

I recently blogged about the current evaluation by the U.S. Department of Transportation regarding the proposed ban on peanuts for all airlines and I'm talking about it again because it's so important. This story is getting a lot of media attention and the food allergy naysayers are out in full force. It's time to speak out because many who oppose the ban are pushing back--hard. We need to show our numbers and strength here, not to mention the very good reasons why this food should be banned from air travel.

Peanuts and tree nuts aren't required to keep airplane engines aloft. People won't die if they are denied peanuts and tree nuts for a couple of hours--but in-cabin exposure to this serious allergen can cause death or life-threatening reactions. People don't choose to have a life-threatening food allergy and shouldn't be denied safe passage on a public conveyance because of this medical condition, all because of a snack that is easily replaced.

Please click this link to the FAAN page about this and you'll find the DOT link that will allow you to comment on this. FAAN also offers advice and direction on using the DOT link, so check that out too.

We have until August 9th, so please make your voices heard! So many people are making ignorant comments and remarks, downplaying peanut and tree nut allergies and portraying those in support of a ban as being overprotective and even "un-American." I guess having allergies isn't American?? In any case, please state your case calmly and share your personal airline stories if you have them.

You CAN make a big difference here. Remember, smoking used to be allowed on airlines, too. So did liquids bigger than 1 oz. Things change. People will get used to peanut/tree nut ban on airlines. But we must speak up.

So click here to find the link to DOT and then share your comments with the government. They want to know how we feel--and how often does that happen???--so let's tell them.

Monday, June 14, 2010

Peanut and Tree Nut Allergy: Tips on Staying Safe at Summer Parties

Summer is party time and of course you need to be careful about peanut and tree nut allergies during this warm and wonderful season. With a few precautions and some common sense, a good time can be had by all. Here are some things that have worked for me and my family:

Talk about it. When you reply to an invitation, notify your hosts immediately about any food allergies or dietary restrictions. It's nice to give them advance notice so that they can tailor the menu or ask you to bring a dish.

Bring the dessert. Most people with food allergies have to avoid desserts from bakeries or even other people's kitchens because of cross-contact concerns or because they can't eat the ingredients--nuts, eggs, wheat. Offering to bring at least one of the sweet treats ensures that your family members will be able to enjoy dessert with everyone else.

Beware of double-dipping. A perfectly "safe" food can become allergenic if the same utensils used for one dish are then used in another. Buffets can become danger zones for this reason. If you are invited to a buffet, either ask to serve your child first or bring your child a separate main dish that only they will eat.

Consider the grill. Grills can become a food allergy nightmare due to marinades containing peanut butter, nut oils or dairy items and/or potentially allergenic proteins like seafood. (Or hamburger buns, if you've got wheat allergy or celiac disease). You might want to invest in a Smokey Joe (small size BBQ) to tote along to a party. That way, you can grill away without worry.

Own the allergy. Don't be afraid to bring your own food or to share your allergy concerns with your hosts. An upbeat explanation of why your child (or you) can't eat a particular food beats staying at home. In the end, it's more important that you enjoy time with friends and family than what you eat while you're there.

Friday, June 11, 2010

Food Allergy Guidelines for Illinois Schools Now Available!

Illinois lawmakers recently passed legislation regarding required guidelines for dealing with food allergies in all Illinois schools. The great news is that these guidelines are already available online.

Most schools in the various districts around the state will most likely adopt these policies and tailor them, if necessary, to their schools' needs.

Many people worked tirelessly to get this passed and also to create the food allergy guidelines documents. A big thank you to all of them!

If you don't live in Illinois and are having trouble getting food allergy guidelines in your state, send this link along to your state government reps as a model of how to implement these policies.

If you do live in Illinois and are having trouble with your school, please refer them to this new food allergy guidelines link for direction and help.

I'm so excited that this was finished before the next school year. Again, thanks to all the parents and state reps who made this possible!

Wednesday, June 9, 2010

Food Allergies and Summer Day Trips: Like the Boy Scouts Say, "Be Prepared"

With summer, comes day trips and with that comes a need to prepare for all the eventualities. Getting kids ready to go anywhere seems like a military maneuver at the best of times, but when you've got kids with food allergies you've got to take a few more precautionary steps. I got to thinking about this during a recent visit to Brookfield Zoo, located just outside Chicago. But anywhere we go this summer--the zoo, an amusement park, the beach--will require the same level of prep.

So, here they are--my tips for successful summer day-trippin' with food allergies:

1. Get yourself an insulated "cooler" shoulder bag. The Brookfield Zoo, like many other family-friendly day trip destinations allows you to bring your own food. I bought a chic insulated bag from Thermos (TM) and it was a godsend on our recent zoo trip. During one of my numerous trips to Target, I grabbed this cute, diaper bag-sized tote and some freezer packs for keeping sammies and drinks chilled. The extra front pockets were useful for the EpiPens, my wallet and assorted sundries so I didn't have to bring a separate purse. The best part--it wasn't huge and didn't weigh a ton and wasn't awkward like some of those big cooler bags.

2. Bring placemats for the picnic table. Since you just never know if the last family was packing peanut butter (and let's face it, they probably were), be ready to protect the table for your child. Besides offering protection from forbidden foods, it also just seems a lot more hygienic.

3. Locate the First Aid station upon arrival. You may never need it, but it's good to know where it is in the event of emergency.

4. Check and double-check that you have your EpiPens before departure. I don't know about you, but I seem to constantly be transferring my items from bag to bag all summer long. You don't want to leave the EpiPen behind, only to discover that it's missing upon arrival at your destination. I place Post-It notes on my dashboard to remind me.

Tuesday, June 1, 2010

Being a Peanut Allergy Mom Is Like Being a Goalie for the Blackhawks


Watching the Chicago Blackhawks Stanley Cup finals yesterday, I couldn't help but be impressed by their nearly superhuman goalie, Niemi. Pucks were flying and he was catching them and blocking them like crazy. I think he blocked 27 shots in all, just in Monday's game.

I could identify with him a little bit. Sometimes, dealing with peanut and tree nut allergies feels like that, especially at the end of the school year.

All of the food involved these last 2 weeks of school have been like flying pucks. Zing! Here comes ice cream day! Bam! It's the Fun Lunch! What are they having?? Is it safe? Better check! Zoom! It's the end of year party and here come more frozen treats!

As moms of kids with nut allergies or any food allergies, we are constantly blocking the shots, i.e. intercepting unsafe foods from our kids. No wonder we get tired sometimes. As tired as the goalie Niemi felt last night, I'm feeling his pain. The end of the school year is a near-constant food fest and there is food allergy risk around every corner.

While the Blackhawks will have a Stanley Cup to show for their efforts if they keep up the wins, we have something equally as good to show for our efforts: a healthy, happy child. And if we get through the year safely, parents, I'm counting on all of us to celebrate like Stanley Cup-winning hockey stars. Well, maybe not exactly like that. :) But celebrate! You've earned it.

Wednesday, May 26, 2010

Food Allergies and Memorial Day--Safety Tips for a Fun Time

I love summer. Living in Chicago, I've learned to savor the heat and humidity. Those January winds make a lasting impression so no complaints here as the temperature rises!

Summer also means having to adjust how we cope with nut allergies and all food allergies. For the non-temperate parts of the country, food is being prepared in different ways and in different venues than winter.

Many of us will be heading out to Memorial Day Weekend festivities, so now's the time to get ready to handle summer's new food allergy challenges.

Here are a few things to look out for:

Grills. While grilled foods are some of the safest options for all food-allergic people because of their simplicity and lack of sauces, outdoor grills present a HUGE cross-contact risk. Marinades may contain many types of allergens including nuts and the shared grill presents many risks for reaction.

If you love grilled foods and want your allergic family members to enjoy them at a party, consider bringing your own portable grill (but be sure to keep it only for your family's use.) A Smokey Joe grill is easy to transport to any location. Memorial Day sales are an ideal time to pick up one of these. You can find them at most stores that sell grills and barbecue equipment.

Barbecue sauce. I love, love, love barbecue sauce but it presents a high risk for nut allergies and some other food allergies as well (wheat and soy come to mind.) The following is my recipe for nut-free barbecue sauce. Homemade BBQ sauce tastes great and is surprisingly easy to make. I use Worcestershire sauce or soy sauce in my recipe--be aware that Worcestershire may contain anchovies. If you deal with allergies to these ingredients, substitute some extra salt and a shot of lemon juice.

Nut-Free BBQ Sauce
This sauce must be heated for a short while to mellow the onion and garlic--it keeps up to a week when refrigerated. Brush it onto meat or chicken at the last minute or it may scorch.

2 cups ketchup (I always use Heinz)
1 tbsp Worcestershire sauce (I use Lea and Perrins) or soy sauce (I use Kikoman)
1 tbsp chili powder or to taste
1/2 cup dry red wine or water
1/4 cup vinegar, either wine vinegar or rice vinegar
1/2 cup minced fresh onion
1 tsp minced garlic
Salt and black pepper to taste

Combine all ingredients in a small saucepan. Cook over medium-low heat, stirring often, for 10 minutes. Taste and adjust seasoning as necessary. When not in use, keep covered in the refrigerator for up to a week.

Dips and dressings. Chip dip and salad dressing may contain nut oils or ingredients. Always read labels if they are store bought before serving to an allergic person. If homemade, avoid them. You have no real way of knowing if cross-contact occured or what's really in it. When in doubt, do without.

Desserts, especially ice cream. Unless you made these yourself, steer clear. Ice cream is high risk for nut allergies because commercial brands are generally made on shared equipment--a fact not usually reflected on the label. It's better to bake your own desserts and bring them to a party. If you're looking for nut-free, egg-free and dairy-free desserts, check out "The Food Allergy Mama's Baking Book." Kelly, aka Food Allergy Mama is a Chicago mom who knows how to seriously bake. Her book has unbelievably wonderful recipes that taste and look delish. Go to her website to order directly: http://www.foodallergymama.com. You can also find her book at Amazon.com -- I also found it in-store at my local Borders.

Friday, May 14, 2010

Latest Peanut Allergy News--Guess What, It Tripled in 10 Years!

I know many of you have been hearing these stories lately and a few people have Tweeted me to ask me for links.

Here is a link to a recent story stating that Peanut Allergy Cases Have Tripled in 10Years. The story highlights that peanut and tree nut allergies seem to be increasing by leaps and bounds--with peanut growing at a faster rate than other food allergies.

I've always suspected this just based on my FAAN's Kids Newsletter--nearly every child featured has peanut allergy and most with that have tree nut allergy, even if they have other food allergies those two are in there.

Of course no one knows why this is. I really think we need to find out.

Running concurrently with this story was one in the New York Times on Wednesday that stated food allergies are NOT as prevalent as has been believed.

I think several things are going on here. One: people are mistakenly believing they have food allergies and are not getting a proper diagnosis. They may have a food intolerance (lactose intolerance, celiac disease) or something else entirely. A severe food allergy has the potential to close an airway and cause violent vomiting, wheezing, swelling of the face, etc. It's important to know if you have a true food allergy, both for health and lifestyle reasons. Don't diagnosis yourself, please!

The other thing is that people are getting a positive reading on a blood test and then not reacting to a food. No one is quite sure why this is happening--medical experts are trying to figure out better tests.

Finally, with more awareness of food allergies, more people are getting accurate diagnosis. In other words, yes they have them.

The one thing I hear from folks dealing with food allergies--either they have them or their kids have them--is a sentiment I feel myself. And that's the following: If you're not affected by food allergies then why do you want to disprove them? It really makes our lives harder when this happens.

However, if people really don't have food allergies and claim that they do, that doesn't help us much either. I can't tell you how many times I've read about a restaurant worker or chef who watched an allergic person consume a supposedly allergenic food with no problem. They then have skepticism about anyone who comes in and says they have a food allergy.

As a parent who has witnessed my child have a very severe, life-threatening reaction and then subsequent milder reactions from a miniscule exposure to peanuts, I just want to protect my child. I know this thing is real.

Parents and food allergy folks: what's your take on this?

Friday, May 7, 2010

Food Allergies and Mother's Day

Mother's Day is almost here and I want to give a special thanks and recognition to all the mothers out there and especially to those of you dealing with food allergies. Yes, dads, grandparents and family members care too, but I know that mothers take the brunt of a lot of the day to day stuff with food allergies.

This year you probably:

Met with school staff or other caregivers about your child's food allergy
Worried when your child went out without you
Were nervous serving your child food in a restaurant
Stayed up late baking cupcakes for a class party
Showed several people how to use an epinephrine auto-injector (including maybe even your child)
Researched the Internet about food allergies for hours
Had a real food allergy "scare" or a false alarm (incidentally, both cause gray hair equally)
Were a regular at the pharmacy
Took your child for allergy testing
Filled out endless paperwork so that your food-allergic child could attend a camp, participate in a sport or other activity
Did I say stayed up late baking cupcakes???

I could go on an on. The bottom line, Moms, is to be proud of all you've done for your child this year. Being a mother is not for the faint of heart, as my pediatrican told me when my daughter was young. That goes double if your child has any type of chronic medical condition.

Mother's Day is supposed to be a day of celebration for mothers--not necessarily a day of complete rest, though that is nice. But food allergies don't take a break, so I bet a lot of you--like me--will be baking and/or cooking for Mother's Day. I'm baking a coffee cake to bring to a brunch. My kids LOVE this cake and I am happy to make it for them. Nothing is better than being to serve my allergic daughter something that she can eat along with everyone else. I'm not officially "off duty" and so what. The cake means a lot to my child--'nuff said. I'm making it.

Mother's Day is a great time to reflect on how close your child's allergies may have made you and your child. This may seem like a strange silver lining, but I'll leave you with this. The other night, my daughter and I were watching Top Chef Masters and they were doing a wedding. One of the tasks was making a wedding cake. She turned to me and said "Mom, will you make my wedding cake? Then I know it will be delicious AND safe for me."

She trusts me. She knows I can bake a heck of a cake. She knows she can count on me. That's what Mother's Day means to me. After I got done swallowing the big lump in my throat I told her I'd be honored.

Happy Mother's Day!

Friday, April 30, 2010

The Future of Food Allergy from Allergic Living Magazine!!!

I am big fan of Allergic Living magazine, a Canadian-based 'zine that covers everything you need to know about living with allergies of all kinds and they devote a great deal of time to food allergies. Unlike some other allergy magazines out there, they don't dwell on gluten-and dairy-free eating--they always include nut allergies as a primary focus. It's the only magazine I know that really does this, so I love them for that. They also have a chart for air travel with peanut allergy that guides you on which airline to choose. Check their web site for details.

Right now, they have a 5th anniversary issue available--on newsstands in Canada, but if you live in the U.S. you may need to order it. I truly recommend a subscription! You can't afford to miss Allergic Living and what the awesome editor Gwen Smith brings to you. Follow Gwen and her magazine on Twitter!

The anniversary issue covers the future of food allergy--everything from a study of a hypoallergenic peanut to the use of Chinese herbs and their role in raising the threshold for allergic reactions. They also examine schools, workplaces, airlines and all public arenas and future policies for dealing with food allergy.

I hope you'll give Allergic Living a try. I realize that some of you may not know about it--so now you do. Let me know how you like it. I think you're going to wonder--as I did--how you lived without it!

Monday, April 26, 2010

Peanut Allergy and "The Brown Bag Lunch"


This is the time of year when many elementary school kids are beginning to have lots of outdoor activities such as Track and Field Day, outdoor field trips and other events that require the dreaded "brown bag lunch." I say "dreaded" because we know what that means for the other kids: "Peanut Butter City." Obviously, PB & J is the ideal portable lunch food for warm weather because it won't spoil in the hot sun. Still, brown bag lunches always make me uneasy because of the risk that peanut butter will be everywhere and also because--what do we pack for our kids?

Many peanut- or nut-allergic kids won't touch peanut butter substitutes because of the smell and texture--too much like peanut butter. So what do you do?

Well, for one thing, see if you can send your child with an insulated bag in which you can place one of those little freezer packs to keep things cold. I know that teachers don't want to be stuck with non-disposable lunch bags, but in our case it may be the best way. Talk to your child's teacher about your concerns. You can get some terrific, eco-friendly portable lunch gear at Litter Free Lunch--incidentally, this great business was created by another food allergy mom!

In any case, you're going to have to get creative. Here are some tips on how to ensure a safe and yummy lunch for your child on event day.

Make use of frozen juice boxes or water bottles. These time-tested little gems will help keep your child's lunch cold in a brown bag and will usually thaw by lunchtime on a warm day.

Think outside the lunch box. Because of the ease with which many non-peanut butter sandwich fillings can spoil, try skipping the traditional sandwich on "event" day. Instead, pack fresh fruit or veggie sticks, a couple of Enjoy Life Carmel Apple Bars or nut-free granola, crackers and/or banana bread or zucchini bread. My daughter's favorite is pasta salad (pasta, non-refrigerated vinagrette and cherry tomatoes).

Ask for nut-free seating. Whether it's a special picnic table spot or a separate, peanut-free picnic blanket (my daughter's school used this approach), the abundance of peanut butter in bag lunches requires attention to seating for the allergic kids. Kids should also bring some type of place mat for picnic tables--who knows what was eaten there before.

Don't forget the wet wipes! Since soap and water is not always available at an outdoor activity, pack enough containers of Wet Ones or some other wipe for the entire class to use after lunch. Your child's teacher can help you with this, since most will appreciate the efforts at general hygiene in addition to helping kids remove peanut butter from their hands and faces.

Readers, how have you coped with this portable lunch problem?

Monday, April 12, 2010

Food Allergies and Teasing: How to Cope

Just to be clear, I'm not talking about bullying, but teasing. Bullying is not to be tolerated. No way, no how. But teasing happens. It's part of life. I'm still teased by adults because of my 6' height. Seriously. So of course I'm going to expect that, like most kids who exhibit any kind of "difference," my daughter has had to deal with some teasing about her food allergy. Sometimes the comments have been provoked by the fact that she was eating something different at a birthday party; other times, kids harp on the fact that a particular food didn't have nuts as an ingredient, so why wouldn't she just eat it?? (I would have given anything to see my then 7-year-old first grader try to explain cross-contact to her classmates--which she did, many times. Good girl.)

Teasing has eased up quite a bit as my daughter has gotten older and with so many kids in her grade having various food allergies as well as other medical conditions, she is not such a novelty anymore. In fact, many times kids have been incredibly compassionate. In third grade, one boy even invited my daughter to "tag" him in a game because he knew she had asthma symptoms from her seasonal allergies and couldn't run as fast as usual. (What a guy! He can take her to the prom as far as I'm concerned.)

Even with these improvements, teasing still persists. At a friend's house recently, my daughter stood by the refrigerator with her friend, getting drinks. Her friend's older sister told my daughter: "Everything in there has peanuts in it. April Fool!" My apparently unflappable daughter took it in stride at the time and then told me about it later.

I tend to not get very upset at these incidents, mainly because any type of difference is cause for kids to tease others. Unfortunately this is part of growing up and as long as no one is putting unsafe foods in my daughter's face or threatening her, I tell her to shrug it off. And happily, she does.

As kids get into school or daycare settings, they may become objects of occasional teasing. Of course, serious incidents should be reported to the teachers, but what about thoughtless, offhand comments? Here are some tips to help your child deal:

Explain that the other child likely doesn't understand. Most of the teasing my child has experienced has stemmed from ignorance about food allergies. Tell your child to calmly state that "I can't eat the cake because I could get very sick. If you want to know more, ask my Mom." This actually works--most young kids won't want to be "busted" by a parent!

Let your child know that everyone gets teased sometimes. Any difference in children is duly noted by the others. Explain to your child that everyone has something about them that's different and that they are not alone. People are unique, so even the "teasers" may have a problem your child just doesn't know about.

Encourage their snappy comebacks, but don't let kids tease back. My daughter sometimes would ask kids "what's the big deal?" or "how would you like it?" when they teased her about her food allergies. However, I told her not to pick on them in return. Two wrongs don't make a right and all of that. When kids speak up for themselves, others usually think twice about saying something next time. And speaking up seems to boost self-esteem as well.

Help them laugh it off. I remember when a girl in my daughter's second grade class said things like "Are you allergic to pencils?" I would tell my daughter: "Boy, that was a silly comment. Who's allergic to pencils?? She must not have had anything better to say!" and we laughed it off together. By dissecting the teaser's comments, I think I helped my child to see the remark for what it was: pointless, silly and in the end--harmless.

By helping our food-allergic kids see that teasing is a part of life for everyone, they can learn how to feel confident and not ashamed for something that is only one part of who they are.

Monday, April 5, 2010

Give Your Food Allergy Essentials a Spring Update!

As the school year winds down, now is a great time to check your food allergy medications, bracelets and other gear to make sure that everything is up to date and current. For example, I came across one of my daughter's many EpiPens only to find that it expires next month. Several others don't expire until next fall, but I definitely don't want any duds laying around.

What about you? For those of you with kids in school or daycare, now is a great time to check the dates of your child's prescriptions (if you don't have them filed away already), see if they're getting low on anything (asthma inhalers or other medications for example) and to make sure that medical I.D. allergy bracelets still fit.

Also, since summer is coming, now is a great time to get those all-important medical forms filled out by your allergist. Allergists will be super-busy for the next few months, so get your forms in early.

Some of you have probably heard of the Center for Anaphylactic Support--they are a great group that offers EpiPen video tutorials as well as a FREE EpiPen renewal reminder service. Check the site to find out more--it's also a great site for friends and relatives who want to learn more about severe allergies.

If your child has outgrown their Medical I.D. bracelet (either mentally or physically), check out some new designs on the Medic Alert website. The Kid Smart program comes with a discount for children 17 and under. New Medic Alert jewelry include girly beading (for young fashionistas) and shoe tags that boys may prefer to wear. (On a side note, you'll also see adorable Alexis Fellows, daughter of mom Michele who runs the fabulous dairy, egg and nut-free bakery Sweet Alexis, when you click on the site!)

Spring updates can be a chore, but don't forget to do a spring sweep of your child's allergy needs. Anything I forgot to mention? Share your spring updates with us!

Thursday, April 1, 2010

Last Minute Nut-Free Easter Basket Ideas for Food Allergies!

With only days to go until the Easter Bunny is due to arrive, parents of kids with food allergies find themselves unable to just grab a big bag of candy off the shelf and go. We've got to get creative when it comes to Easter Baskets since so much candy and food in general is off-limits at this time of year. There are a few candies for nut allergies out there. For example, this year I discovered Hershey mini eggs are safe. Also, Starburst jelly beans and some Sweet Tarts candies. For candy info, always check the labels. If you have questions about specific items, call the company. You'd be surprised how much this helps get labeling more clear. Keep those calls coming, folks!

But what if you don't want to sugar your kids up for the holiday? Besides the question of food allergies, many families aren't interested in over-feeding their kids tons of sugar. Of course, some candy and sweets at Easter are traditional and fun, but they don't have to be the whole show.

I think it's nice to offer food-allergic kids a balance of safe sweets and non-edible items that celebrate the season of spring.

Here are a few nut-free and allergy-friendly suggestions for last-minute Easter basket filling. Note: most are inedible treats.

- Chocolate dipped fruit (like strawberries). Break out the Vermont Nut-Free Chocolate Chips or Enjoy Life Chocolate Chips, melt them down and dip some strawberries in the melted goodness. If you stick a lollipop stick in the end, you have chocolate fruit pops. If you don't have Vermont Nut-Free or Enjoy Life chocolate chips in the house, Baker's Brand baking chocolate and some Hershey's baking chocolate is safe for nut allergies (check the labels for other food allergy warnings.) You can buy lollipop sticks at craft stores such as Michael's--look in the Wilton cake baking aisle.

- Kid-sized garden tools. Encourage your kids to help the garden grow with mini shovels, packets of seeds, gardening gloves, even small decorative garden stakes--Target has gnome and frog garden stakes for $3.99. (Of course, for young kids, be careful with the garden stakes). This is a great way to put the focus on spring and growing your own flowers, herbs and vegetables. One note: some gardening mixes may contain peanut or tree nut materials. Check the labels.

- Small books. Mini books about Easter, baby animals or Spring make a great addition to the Easter basket while encouraging reading. We always have included these in our kids' baskets and they are a hit.

- Windup toys. World Market has a great selection of small, inexpensive windup toys for Easter baskets. Kids go crazy for these!

- Easter or Spring-themed pencils and notepads. Target has some wonderful packs of these in their $1.00 section.

Readers, any other favorites? Let us know.

Tuesday, March 23, 2010

Food Allergy Guidelines and You - Make Your Voice Heard

Since many of you e-mail me and want to know what you can do personally to help the cause of people with food allergies, here's a chance to help your voice get heard! The National Institute of Health seeks to create guidelines for management of food allergy and they are looking for public comment.

Here's the press release. Click on the links in the release to offer your comments and help with national guidelines that will be followed by physicians.

Public Comment Sought On Draft Guidelines for the Diagnosis and Management of Food Allergy

The National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health, is seeking public comment on draft Guidelines for the Diagnosis and Management of Food Allergy. The public comment period is open for 60 days beginning March 5 and ending May 3. Health care professionals and interested members of the public are encouraged to review the guidelines and participate in the open comment period by visiting the NIAID Food Allergy Clinical Guidelines public comment Web site.

"Food allergy is an important public health problem that affects millions of Americans, and may be increasing in prevalence," says NIAID Director Anthony S. Fauci, M.D. "These draft guidelines provide information to a wide variety of health care professionals about how to diagnose and manage food allergy, and treat acute food allergy reactions."

The guidelines are based on an independent, systematic review of the scientific and clinical food allergy literature. Information gathered from the literature review was incorporated into a full report on the state-of-the-science in food allergy that will be made available after the publication of the final guidelines.

As part of the process of developing the guidelines, NIAID brought together a coordinating committee that included representatives from 33 professional organizations, advocacy groups and federal agencies. The role of the coordinating committee was to appoint an expert panel, review drafts, approve the final guidelines and develop a plan to distribute the final guidelines. The expert panel, composed of 25 members with expertise from a variety of relevant clinical and scientific areas, wrote the draft guidelines.

The guidelines cover the following topics:

•Definition and prevalence of food allergy
•Natural history of food allergy and closely associated diseases
•Diagnosis of food allergy
•Management of non-acute allergic reactions to food
•Management of acute allergic reactions to food, including anaphylaxis, a severe, whole-body reaction
"These guidelines represent a major commitment on the part of many people and organizations working to improve the care of individuals with food allergy," says Daniel Rotrosen, M.D., director of the Division of Allergy, Immunology and Transplantation at NIAID. "The process of developing the guidelines has also helped us identify gaps in the current scientific knowledge that we can begin to address through future research."

All comments will be reviewed by the coordinating committee, expert panel and NIAID. Where appropriate, these comments will be used to develop final guidelines. The final guidelines are expected to be released by the fall of 2010.

More information on the development of the guidelines may be found at the NIAID Food Allergy Guidelines Web page at http://www.niaid.nih.gov.

For more information about NIH and its programs, visit http://www.nih.gov.