Showing posts with label peanut allergy mom blog. Show all posts
Showing posts with label peanut allergy mom blog. Show all posts

Tuesday, December 27, 2011

Food Allergy News: New to Peanut and/or Tree Nut Allergy?

With several of the big holidays behind us, I've been hearing from many of you who are new to peanut and tree nut allergies, in addtion to other food allergies. For some reason, the new year brings new food allergies and it can be a very scary and confusing time.

That's why I'm including a link to a recent post featuring my advice for those new to food allergies.

Take heart, take your time to get used to your new life and most of all, join us here as well as on my social networking including my Nut-Free Mom Facebook page and Twitter. I hope you will also check out some great food allergy resources including FAAN, The Food Allergy and Anaphylaxis Network and FAI, The Food Allergy Initiative.

Another great resource for the newly diagnoses is Allergic Living magazine. (Full disclosure: I'm an associate editor. But I started as one of their readers and it's a great magazine!)

Sunday, October 23, 2011

Trick or Treating with Food Allergies??


I ran the following post last year and with the questions and comments I've been getting lately, I think it's worth a repeat. Halloween can be a scary time of year for kids with food allergies but you can make it a lot less scary by shifting attitudes and making some changes to the routine. Kids love Halloween--all kids. So let's find ways for them to have fun and participate!

Halloween is on everyone's mind these days and if your child has severe food allergies, the prospect of candy is definitely scarier than any other aspect of this holiday.

When my daughter was first diagnosed with life-threatening peanut and tree nut allergies, we considered not doing the whole trick-or-treating thing. It just seemed counterproductive and potentially harmful emotionally. Why be handed lots of candy that you can't eat? We thought about doing other Halloween activities, like attending Halloween-themed events at the zoo and Chicago museums, but seriously thought about just skipping the candy routine.

My daughter was 5 years old at the time and all she cared about was dressing up like a Disney Princess (that year, I think it was Sleeping Beauty.) She really wanted to go door to door in her fancy costume and I didn't want to have her miss out. Thinking back to my own childhood, Halloween was never only about the candy. It was mostly about dressing up and hanging out with my friends after dark. Candy was a nice side benefit--but definitely not the whole point.

Why should it be any different for my daughter? We decided to take her out and just remove the obvious unsafe candies--Snickers, Reeses, Butterfingers, M&Ms, and sort through the rest of it later.

It was amusing to see the reactions of neighbors who tried to hand my daughter a Snickers bar. She would politely refuse, ask if they had anything else and then say "OK, then. Thank you anyway" and skip back down the street. Most were like "huh?" A few thought she was being ungrateful or picky. So what? She was so empowered. Finally, I said "just take the candy and I'll put it in a separate bag." That's what she did and all was well.

When we got home, I traded her unsafe candy for a Halloween treats bag: Bonne Belle lip balm, stickers, safe candy and a Halloween book. She loved it!

By the next year, she was running back to me to hand me Snickers bars and the running to the next house without a second thought. Let me tell you, people love their Snickers. I had a bag full of them by the end of the night. No matter. Being with her buddies and dressing up was enough for my daughter--plus she knew she got her own special goody bag later.

A lot of you may wonder "what's the point" about trick-or-treating with nut allergies but if your child really wants to do it, I say go for it. It's a way to show them that they can participate with other kids, while still being careful about their allergy. Now that my daughter is older and her trick-or-treating days are numbered, I'm so glad she enjoyed this. I don't think she'll remember the bag full of Snickers as much as she'll remember the good times she had dressing up, seeing "spooky" decorations and running around in the dark with her friends

Monday, June 13, 2011

Food Allergies: Teaching Your Child to Self-Advocate Pays Off

I wanted to share a story with you since I know that many of us worry about teaching our kids to handle their allergies on their own. When your little one is diagnosed with severe food allergies (usually this happens at a very young age)it can be difficult to imagine them ever managing it on their own.

From personal experience as well as what others share with me, I've found that teaching a child to manage the allergy should begin immediately. Obviously you don't want to scare a tiny child with too many details, but emphasizing "safe" and "unsafe" foods and teaching kids how and what to avoid is something you can do right away. Two really good resources for helping you to do this are the Beyond a Peanut flashcards and the young children's book "Ally the Allergic Elephant" by Nicole Smith (who I met recently, along with her awesome teen son, Morgan.)

My family used these resources as well as positive encouragement and reinforcement with my daughter from the time we knew of her allergy at age 4. Her own memory of her severe allergic reaction (that clued us into the fact that she had an allergy at all) certainly keeps her on track, but our family's consistency with regard to managing the allergy has also helped. Like many of you, I've often felt like a broken record, repeating myself over and over, but now that my daughter is 11 years old, she's taken over a lot of the ownership of her allergy management.

Case in point: This past weekend, my daughter attended a Taylor Swift concert with her cousins in Detroit. Since the concert was held at Ford Field (a football stadium) of course peanuts were being sold by vendors. Luckily, there weren't a lot of peanuts around her seating area, and it was nowhere near as "peanutty" as a baseball game, but she told me later that she was a little concerned.

Since we knew this would probably be an issue, she asked to eat before going to the concert and while there, only ordered a Coke. Let me tell you, she could have cared less about eating at the concert. It was her first "grownup" concert so it was all about Taylor Swift and the experience of seeing her.

What really impressed me was that she was careful to only order a "bottled" Coke from a vendor at a stationary location in the arena. Why? She noticed that the vendors selling food/drinks in the stands were serving peanuts as well as "open," already-poured drinks and she didn't want to risk the cross contact. This was something she spotted on her own and brought up without prompting. She was right to be concerned because the vendor-sold items did carry a risk that was better to avoid altogether. She also carried her own hand wipes and cleaned her hands--you can't have too many hand wipes when out and about with a food allergy.

Do I wish she didn't have to be so concerned? Of course. But this kind of proactive thinking (along with eating before the show) is what's going to keep her safe and healthy as she moves to even more independence. It wasn't a big deal to her--by now, it's just part of life and it doesn't faze her.

This is such a great point for a child to reach. It doesn't mean I don't worry anymore, but since I can see her making the right choices, I feel good about her doing things on her own.

For those of you who have very young kids facing food allergies, just keep playing the "cracked record" and one day, your kids will be telling you how they can stay safe.

And that's a huge point to reach, because let's face it: no one is going to be as concerned about food allergies as you are (or your kids are). They have to self-advocate and the sooner they learn, the better for everyone.